Community Resources

Local Resources

• Alzheimer's Association - Utah Chapter
  www.alz.org/utah
  Provides a 24-hour Helpline, local education programs, support groups, and more. The National Site provides in-depth information and nationwide advocacy.


• Salt Lake County Aging Services
  www.aging.slco.org
  Provides information, advocacy, services and assistance for older adults in SL County. Visit www.55plusbook.org for a complete directory of organizations, support agencies and community services available to Utah residents.


• Utah Department of Human Services
  www.hsdaas.utah.gov
  Offers home and community-based services throughout the state, which aim to allow more Utah residents who are 60 and older to remain independent.


• AARP Utah
  www.aarp.org/states/ut/
  A non-profit membership organization of persons 50 and older, dedicated to addressing their needs and interests.

National Resources

• Association for Frontotemporal Dementias
  www.ftd-picks.org
  Dedicated to promoting and funding research, and providing education and support for frontotemporal dementia (FTD).


• Alzheimer's Disease Education & Referral Center (ADEAR)
  www.nia.nih.gov/Alzheimers
  Provides current, comprehensive information and resources on Alzheimer's from the National Institute on Aging (NIA).


• Lewy Body Dementia Association
  www.lbda.org
  Provides information, support and advocacy for dementia with Lewy bodies.


• Administration on Aging:
  Alzheimer's Resource Room
  www.aoa.gov/alz/
  Provides information and resources on Alzheimer's for elders, caregivers, and professionals.

Research Resources

• Information on Clinical Trials
  
  • FDA Clinical Trials
    Useful information from the U.S. Food and Drug Administration about participating in clinical trials.


• Search for Clinical Trials
  
  • ClinicalTrials.gov
    A registry of ongoing clinical trials, with info about who can participate, locations, and contact information. This vast registry contains ALL trials being conducted in the U.S. and abroad.
  • Alzheimer's Clinical Trials
    Ongoing clinical trials specifically for Alzheimer's disease.
  • Centerwatch.com
    A listing of industry-supported clinical trials, as well as information for patients and industry professionals.


• Research News & Specific Studies
  
  • Alzforum.org
    An independent organization that reports on the latest scientific findings, provides research databases, and discussion forums about recent developments.
  • ADCS
    Information about the Alzheimer's Disease Cooperative Study (ADCS), a major initiative for Alzheimer's disease clinical studies in the Federal government.
  • ADNI
    Information about the Alzheimer's Disease Neuroimaging Initiative (ADNI), including a general overview of Alzheimer's, mild cognitive impairment, and research that is currently underway. This site also serves as an entry point through which ADNI data may be obtained by external investigators.